AWARENESS MAKES A CHANGE

I am Jasmi from Bangalore and I have Osteogenesis Imperfecta (OI) or the Brittle Bone Disease. I am eighteen years old and I would like to share my story with all of you.

I was born normal and my first fracture occurred at the age of 4 years while I was playing like any other normal child of that age. Initially, my parents thought it was just a fracture and got me treated. However, frequent fractures happening for the slightest reasons got them puzzled and they decided to take me to the Indira Gandhi Institute of Child Health (IGICH). By then I was 9 years old and the Pediatric Orthopedic doctors diagnosed me to have Osteogenesis imperfecta.

Once diagnosed, my parents were unaware about the care that I required. The doctors there educated me and my parents about the special care needed and of course, since then it has been a life full of restrictions. I have experienced about 10 fractures and have undergone rodding surgeries for both my femur bones and tibia on different occasions.

I was fortunate to be accepted in regular school and college. Although school life was fun, I used to sometimes experience dull moments when my teachers would assign responsibilities / activities to my friends that I could not execute. However, I would rid myself off these negative feelings by thinking that I am unique in certain ways than being disabled.  While I was in college, the walking between classrooms used to cause excessive stress on my lower limbs. I began to use a walker and at times I also use the wheel chair.

I love drawing and painting. It helps me relax and gives me a creative power to make things beautiful and have won several prizes in it. I am also a topper in academics and my condition hasn’t deterred my future ambition and aspiration to become an engineer.

I would say I am different, unique rather than disabled. I like to look at the brighter side of life and believe that if you are feeling broken, have hope and trust in God, you will soon come out of that situation. This thought has helped me realize that I can bounce back even after breaking.

In my case awareness was a little late but it did change my perspective. I am here sharing my story with all of you because I wish to support IOIF in its efforts to raise awareness about OI. Awareness makes a change.

5 thoughts on “AWARENESS MAKES A CHANGE”

  1. Can I just say what a comfort to find an individual who actually knows what they’re talking about on the web.
    You actually realize how to bring a problem to light and make it important.
    More people have to look at this and understand this side
    of your story. I was surprised you are not more
    popular since you most certainly have the gift.

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